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I have had Polycythemia vera for 25 years. I was started on hydroxyurea two months ago and recently developed severe petechial hemorrhaging. I was admitted to the hospital with a platelet count of 9,000. I received a six pack of platelets and over seven days (being off the medication) my platelet count had climbed to 74,000. As of Sunday, July 5th, it was at 139,000 (off the medication for ten days). I was given the medication to help prevent the POTENTIAL of developing a blood clot. I have managed my Polycythemia vera pretty well without medication for 25 years (I do take baby aspirin) and wish I had never taken this.




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At the age of 23 I have been on Hydrea for about two years now due to Essential Thrombocythemia and my platelets count over 2 million. I have tried many different medications for the same purpose but the majority of them caused unbearable side effects. And in spite of the fact that with Hydrea I do have some side effects - fatigue, some muscle pain and easy bruising - I can tolerate them and in addition I get so much better control over my platelets level what is a big change for me. My doctor helps me adjust my dosage and monitors my health condition. He also observes the positive effect Hydrea provides, so I am quite enthusiastic and hopeful. Would recommend Hydrea to other people with similar health condition.

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